Hysteroscopy with resection of uterine septum

At my saline ultrasound, my fertility doctor saw what she suspected to be a uterine septum (an upside-down, triangular shaped piece of tissue which divides all or part of the uterine cavity in two). The septum does not have proper blood supply, so if an embryo were to implant over the septum it would likely result in miscarriage. A likely cause of our pregnancy losses. I would need a hysteroscopy, a straightforward outpatient procedure, to have it removed. First, a camera (hysteroscope) is inserted into the uterus through the cervix. A wire loop with electrical current is extended through the camera and applied to the septum tissue. As the septum is incised, the tissue springs back in the uterine wall, creating a normal uterine cavity.

I was ready. My RE started me on birth control pills two weeks before the surgery, to thin the lining of my uterus and keep me from ovulating and getting pregnant. The morning of the procedure I was to take misoprostol, to help soften the cervix. I took the pills four hours before the surgery and laid down until it was time to go to the hospital. I had been warned the misoprostol could cause cramping. Which it did. Subtle at first, but once I arrived at the hospital two hours later they started to intensify. As I was getting prepped for surgery I I became quite uncomfortable, and started counting down until the anesthesiologist arrived to give me some pain meds. My husband stayed by my side.

The surgeon (my RE), her resident, the anesthesiologist, and a few nurses scurried around me. I was given pain meds and some valium, and after a quick goodbye to my husband, was wheeled into the OR. They continued prepping for surgery, and I was soon asleep.

I woke up 2 hour later. I vaguely remember the nurses saying I had a fever, but that it was normal. I felt quite sleepy and woozy, but tried my best to talk to my RE about how the surgery went. She told me I had a sizable septum, and because of that she put in a balloon catheter into my uterus, which would stay in for five days while my uterus healed. This would prevent the walls of the uterus from touching to prevent scarring or a re emergence of another septum. She warned me it could cause more cramping.

I stayed in the recovery room for four hours, much longer than what was usual, the nurses noted often. I had become horribly nauseous, probably from a combination of the pain meds and anesthesia. They also would not let me go home without urinating. Which was not happening. Two bags of IV fluid, 3 juice cups, 2 glasses of water and 4 hours later, I finally went. After a couple “way to go!”’s and some cheers from the nurses, they let me go home.

I was very tired for about 3 days after the surgery, and it took close to a week to really feel like myself again. I had some cramping for a few days, but generally felt ok. My RE prescribed me 2mg of Estradiol to take twice a day for 28 days, and 200 mg of Progesterone to be taken for the last 12 days of the Estradiol. Five days after the surgery I went to my RE’s office for a follow up and to have the balloon removed (a little uncomfortable and weird, but not painful). Once I get my next period I’ll return to her office for an ultrasound to see how my uterus is healing. If all is well, we can start trying again next cycle.

*Update: I got my period 28 days after the surgery and went back to my RE for a CD3 ultrasound. She found a small cyst, likely a side effect from the surgery, and advised us to wait one more cycle before we started trying. My next period I bled for 2 weeks and my cycle was 39 days long, both of which is very unusual for me. When my period finally returned and I went back to the RE for a CD3 ultrasound the cyst was gone, and we were cleared to being trying again.

93 thoughts on “Hysteroscopy with resection of uterine septum

  1. Hi Alexis! I just found your blog in search of some answers and comfort. I just had a hysteroscopy last Tuesday and had many similar symptoms that you had. I did not have to have a balloon placed in my uterus but have been put on Estrodiol 2mg as well. I actually started bleeding today which made me a little nervous? Did you have any bleeding while on the Estrodiol? I would normally not be due for my period until next week but wasn’t sure what kind of side effects it would have. Any info would be awesome! I have left a message with my RE’s nurse but just wanted to find a little comfort. I am also 34 years old and had an ectopic pregnancy last March. Hoping this will help with any issues. Thank you for your blog!

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    • Thanks for stopping by my blog! I’m so sorry to hear of your ectopic pregnancy. That is really hard and really scary and my heart goes out to you. I hope you’ve been able to find some answers and that the hysteroscopy sets you up for nothing but success in the future. I bled slightly right after the surgery for a few days, and then not again until I stopped the progesterone 28 days later. Are you taking progesterone? I think the progesterone prevented any bleeding before then. Undergoing a hysteroscopy can temporarily mess with your cycles, so you may have just gotten an early period, and not necessarily related to taking the Estradiol. My first period after the surgery lasted 2 weeks (which also freaked me out and led to a frantic call to the RE nurse), but all my cycles after that were back to normal. It’s hard not to worry, but I think your body just needs some time to regulate again. Of course, I’m not a doctor, so definitely listen to what the nurse tells you. Sending a hug your way and wishing you lots of luck!

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    • Your story sound similar to mine! I had an ectopic Dec 2014 and after 10 more cycles of ttc nothing. My RE just found a septum 5 days ago. I’m schedule for surgery Jan 12, ek!
      Have you been able to conceive since surgery? How long did it take?
      Thanks in advance!

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  2. Hi, Alexis. I have been reading your blog and it’s been a great source of both support and information! I had two miscarriages and I am now considering having a hysteroscopy to check my uterus. However, I am hesitant since I already had a laparoscopy, which was not the best experience. I already had an HSG which showed no problems and a 3d ultrasound which was inconclusive. The 3d ultrasouund showed a slight indentation on the top of my uterus and it is not quite clear if it should be classified as a normal variant or an arcuate uterus. Was your septum quite obvious in your SHG? I know that it proved to be quite sizeable after the surgery, but did you have a strong indication for it from the SHG? Doctors are not sure if a hysteroscopy is justified and I am more confused than ever.

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    • I’m so sorry to hear of your miscarriages and all the confusion you are facing now. I can see why having the hysteroscopy is a tough call. When I had my SHG my doctor initially thought it could possibly be a “small septum,” as she put it, but also said she couldn’t be 100% sure just from the ultrasound. So the first purpose of the hysteroscopy was to confirm, and then repair if needed. During the procedure is when she saw it was actually a decent size, extending about 50% of my uterus, but that wasn’t evident from the SHG. I have heard that an SHG may be more sensitive that an HSG in detecting uterine abnormalities, which might be why your HSG looked clean, but of course I’m not a doctor and your doctor may have a different opinion. I’m hoping if you do go through with the hysteroscopy it is a better experience for you than the laparoscopy! Please let me know if you have any other questions, and I’m wishing you lots and lots of luck. ❤

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      • Thank you so much for your response and kind wishes. Well, my doctors won’t give me any clear guidance on this matter, since my deviation from normal was so marginal, and there are not many other options where I live, so I don’t really feel like I can rely on them. Your experience is very encouraging and is certainly one of the things I will keep in mind while I try to take a decision. I hope you are starting to enjoy your pregnancy, I really feel that everything will turn out great for you this time and please do keep us posted! xoxo

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  3. Hi Alexis,

    Thank you for posting this blog! I am 26 years old and had two miscarriages within 6 months. After the first miscarriage I had an MRI to confirm that I had a partial uterine septum. I was trying to schedule surgery to remove the septum and during that time I got pregnant again and had another miscarriage. When I finally had my surgery to remove the septum my dr said that the septum was larger than he thought but he was able to remove the whole thing. The downfall is that he said that I also have a very slight bicornuate uterus which will more than likely cause my baby to be breech and we will have to schedule a c section for my future pregnancy. Considering everything my husband and I have been through I don’t really consider that bad news. After the septum removal surgery my dr put me on estrogen for 2 months. When I completed that he put me on a 10 day progesterone to trigger my period since I hadn’t received a period while on estrogen. Once I got that period it was extremely heavy and it went for 6 days. My dr gave me the clear to start trying again. I was really excited feeling like I was just another normal woman trying to TTC. I skipped my period this month and had two negative pregnancy tests. The dr said to wait a couple more weeks and take another test. If it’s negative then schedule an appointment. I can’t help but worry and let my mind race about the fact that something else is wrong with me now that I’m not getting a period. I am now going on cycle day 45 with no period. Any help or advice would be very much appreciated! I don’t know anyone who has been through this.

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    • Hi Lauren, I am so sorry to hear of your miscarriages and for all you’re going through. I can really relate to a lot of your fears and worries. From my experience, it did take a few cycles to get my period back on track (which had always been very regular, even post-miscarriages) after my surgery. My doctor put me on just one month of estrogen, with progesterone the last 12 days of the cycle to trigger my period. That period was like yours, with 6 days of heavy bleeding, and then the next month was extra wonky, with two weeks of heavy bleeding (which had never happened to me before) and an extra long cycle. After that everything got back to normal. I also freaked out that my normal periods & regular ovulation would be permanently messed up somehow, or that I would have more trouble getting pregnant the next time. But everything worked itself out eventually as my uterus healed over the following few months, and I think that’s probably the case with you too. If for some reason you aren’t ovulating or getting periods in the meantime, your doctor will be able to help you along with medications (i.e the progesterone or with Clomid). I know how hard it is after suffering the trauma of miscarriages to not panic that you’ll keep running into more issues, but you are in good hands with your doctor, and in all likelihood your body is still adjusting post-surgery. Of course, it’s a good idea to call your doctor like he suggested and he’ll be able to confirm for sure. I’m wishing you all the best and will be keeping my fingers crossed for you! ❤

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  4. I just read your post. Have you become pregnant since you had this done? I’m at a loss. I have a 5 yr old and had a wonderful pregnancy and we decided to try for baby number 2. Got pregnant in Nov an had a CP at 5 weeks, got pregnant in Feb and had a CP at 4 weeks and a couple days, then found out last Monday I was pregnant again but have already miscarried. My OB said I had a septate uterus and wanted to do a hysteroscope procedure. I have another OB dr as well and told her so she had me get a saline ultrasound done this past Wednesday and the radiologst said I didn’t have a septate uterus and everything pretty much looked good. So I’m so confused and lost once again. I don’t know if I should let me OB do the hysteroscope procedure or not now.

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    • I’m so sorry to hear of your losses. I’m curious what made your first OB think you have a septate uterus? They can be hard to detect unless you do a saline ultrasound (like your second OB did), or an HSG, and even then they may not be able to confirm it’s presence without a hysteroscopy. I can understand why you are feeling confused and lost. Perhaps you may want to see an RE, who is specially trained for these kind of issues? The good news is that you’ve had a healthy, full term baby, and am sending prayers that baby number two will come soon for you. I did indeed become pregnant about 6 months after my hysteroscopy, and so far at 27 weeks things are looking good. My thoughts are with you, and again, so sorry for all that you’ve been through.

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      • I’ve gone through something very similar to yours, having a large septum dividing from the uterus, right down to the vagina so I had a cervical cerclage put in to to prevent an imcompetent cervix. I miscarried last year(now thinking the egg implanted on the septum). No luck TTC since then so had the transvaginal excision a month ago. Feeling really hopeful and hoping that was the only thing preventing me getting pregnant.

        How long after surgery did you start TTC? It’s so reassuring to hear from other girls in the same situation.

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  5. Thanks for your reply! So happy to hear u r having a good pregnancy. My first dr did the vag ultrasound to make sure all the tissue had passed from my 2nd MC and that’s when he told me that. I took pics of my saline ultrasound after it was done and looking at them it looks normal to me. I’m wondering if I go ahead with the hysteroscope procedure will it hurt anything? I just want to know why I keep miscarrying 😦

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    • I understand how hard it is when you just want answers and explanations for your losses. I’m so sorry you’re dealing with this. I don’t believe going forth with the hysteroscopy will hurt anything (although best to ask your doctor), and it might be the only way to get a definite answer if your doctors are saying conflicting things. Perhaps you could have the first doctor take a look at your saline ultrasound photos and see what he says? I really hope you get answers soon!

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      • I have an appt with my first OB tomorrow and I am going to show him the saline ultra sound pic and see what he says. My dr that sent me for the ultra sound suggested I start clomid. I can ovulate on my own so she says it will just make my eggs stronger and more than likely will help me carry to term. Have you ever had experience with clomid?

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        • So sorry for my late response. I have never tried Clomid, but did one cycle on Femara, which is similar, when we did our IUI. I also ovulate on my own and ultimately decided I didn’t need the drugs and stopped. I got pregnant naturally the next cycle. I would trust your doctor, but also listen to your gut. I know many people who have had success on Clomid!

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  6. Hi Alexis. Your blog has been so comforting. I am also 34 years old, I have a husband and two dogs. We recently decided we were in a great place and it was time to start a family. After months of trying and two suspected miscarriages I asked my doctor to test us. His results came back relatively normal. My results weren’t as good. I had an HSG that revealed a rather large septum. I am scheduled on the 5th for surgery and quite honestly, I am terrified. Everyone keeps telling me that I just need to get through this surgery and everything will be fine and we will be able to start our family. I just don’t feel that way. I feel like if I get optimistic and excited I will just let myself down, again. It is so frustrating. I appreciate all of your details about your experience. It is nice to know that I am not alone. Best of luck to you on your journey.

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    • Thank you so much for visiting my blog. I’m so sorry for your miscarriages and the trouble you’re having starting a family. I really understand your fears, especially the fear of getting too hopeful or optimistic. And even though I knew I was lucky that they found a possible reason for my issues (and a reason that was fixable), I worried too that the surgery wouldn’t be enough. But, at the very least your surgery will be a step in the right direction and get you that much closer to starting a family. I’m crossing my fingers for you and feel hopeful for you. ❤

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      • Thank you so much for your kind words. I appreciate it. I also read that your husband had low sperm morphology. My husband’s test results were overall good except the morphology was low. Did you find that contributed to your issues in conceiving?

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        • Yeah, he had low morphology most likely due to his varicocele. After his surgery to fix the varicocele his morphology improved a bit. It’s hard to tell how it factored in because each of the three times we’ve gotten pregnant it happened on the third cycle trying, even after his surgery (and mine). I always felt like the poor morphology must have had something to do with the miscarriages, but my doctors told me that’s not the case…I was still skeptical though. I think if your husband’s overall count is high though, the low morphology matters less as there will still be plenty of normal, healthy swimmers there!

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  7. Hi Alexis,
    I haven’t read much of your blog except this post, I Googled getting a uterine Septate removed and your blog came up, which I was very happy to happen upon. Since I know absolutely no one that has had this done and it’s not something I really feel comfortable posting on facebook to see if anyone has had it done.
    So, I’m 26, I’ll be 27 in July and have been ttc since January 2014. We found out we were pregnant in September 14′ and had a miscarriage about 4 weeks later. A very touch pill for us to swallow. We’ve been trying since them and was told I had a heart shaped uterus from my OBGYN. So I felt it was time I headed to a fertility Dr. and I’m SO glad I did. I had an HSG done and found out I had a pretty large uterine septate, which is great news since it can be removed unlike the heart shaped uterus.
    So here I am 2 weeks prior to my surgery, I had my pre-op yesterday and was explained to of what all will happen and the medication I will be on. My medicines and procedure seems to be identical to yours, so I’m hopeful in that everything will go just as smoothly. However, as it is surgery I am still nervous and honestly more nervous about the catheter!
    Did you have a hard time with bathroom issues and showering while wearing it?
    We have a very small time frame to get this all done in, my husband and I are leaving San Diego, getting out of the military and heading back to our home state, about 5 weeks after my surgery, so everything is happening very quickly and it’s hard to digest, but I am so ready to get this done and over and start a new chapter!
    Sorry for the long book and I appreciate any feedback of you have time!! Thank you so very much! 🙂

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    • Thank you for visiting my blog and for reaching out. I’m so sorry to hear of your struggles. But like you, I was relieved to find out about the uterine septum as it is something that is relatively easy to fix. I understand the nerves for the surgery, but it is a pretty simple procedure and recovery! I didn’t have any problems with the catheter beyond just some mild cramping. I couldn’t feel it or tell it was there. And the surgery seemed to have helped, as I got pregnant 5 months later and am now 35 weeks along 🙂 Wishing you lots of luck…definitely let me know if you have any other questions or concerns, I didn’t know anyone either when I had it done which can be a little nerve-wracking. So I’m here if you need it 🙂 Hugs!

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      • Thank you so much for responding and commenting back with great and positive feedback. I’m so ready to have this surgery, I just want to be done and recovering.
        I’m so beyond excited for you that you are in a healthy pregnancy, that’s thrilling and I pray to be able to say the same sometime soon! Thank you again and take care! 🙂

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      • Hi again! So it’s been two months since my surgery, all went wonderfully! The Doctor even took about about 20 polyps, so he said there is now plenty of room for a baby! He put me on a medicine to jump start my period after a month so he could do an hsg with saline to make sure all was fine and it turned out all is fine and was successful, very great news. So after that appt. to my ovulation calender I was ovulating and since the DR. have the OK We tried, well I am 8 days late now! I don’t know what to think as I am obviously getting more and more excited with everyday that passes along with two negative tests, but I’m also trying to think realistically that my body is probably not “back to normal” yet. My question is, after you had your forced period from the meds were the rest of your periods normal after that, or how long did it take for them to get normal? We’re you ever in the same boat as you thought you might be but your period was just way too late?
        Thank you so much for any answers you can provide me with.
        Congratulations on your sweet bundle of joy!

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  8. Hello,
    I was just diagnosed with a septum uterus and my RE told me I’d have to go on birth control for 2 months before the surgery, then wait 2 months after before ttc. I’m debating doing the surgery or not as a 4-5 month wait to ttc seems like a long time to me and I haven’t been ttc for very long to begin with so I might be able to get pregnant without the surgery. Curious why such a long time frame I was given. How long were you on BC?

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    • I was on birth control for 2 -3 weeks before the surgery, I think mainly to keep the uterine lining thin and to make sure I didn’t ovulate and get pregnant before the procedure. 2 months seems like a long time – did your RE give you a reason? I was also told I could start trying 1 month after the surgery if everything looked good (I ended up with a cyst, so didn’t get the go ahead for 2 months). I understand your hesitation if it will put your efforts on hold for 4-5 months! Did your RE give an indication of how big (s)he thought the septum was? I think that will make a big difference on the effect it will have on trying to conceive. Best of luck to you!!

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      • I thought I’d just post a followup as I had my surgery to remove the septum today. I ended up only going on the pill for a month prior to surgery and that seemed fine. The septum itself was 1/3 of my uterus so borderline in terms of when they’d recommend surgery, but afterwards the Dr said it was significant still and thinks I made the right decision to go ahead and get rid of it. The surgery itself was super easy – I was put under? The surgery was about 30 mins and then I was kept in recovery for about an hour and a half. They gave me painkillers at the hospital and a script for when they wear off but I haven’t needed to use it. Now I have to go on estradiol and progesterone for 2 cycles and the Dr said hopefully I should be back on track. Just thought I’d post as I found your blog really helpful and thought it’d be good for others to hear about another experience if they’re thinking of having the surgery.

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  9. Hello I just found your blog and it has helped me a lot. I just had this same surgery 6 days ago and I am a little worried and dont want to call the doctor and sound like an idiot. I have been online reading today and everyone is posting that with the balloon inside you should have a catheter that somewhat hangs out of your vagina and tapes to your leg which concerns me because I dont have that and I am worried that something is not right. I have to go in the morning to have the balloon removed so I guess I’m confused was your balloon attached to a catheter like that or was it tucked inside I have even read that some of the patients removed there own. I’m so sorry for this weird question!!

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    • Hi there, and no worries, I had so many weird questions when I was going through this! I did not have a catheter taped to my leg, I believe it was coiled on the inside. I also definitely would not have been able to remove it myself! The doctor showed me what the balloon looked like after she removed it and the whole thing was quite small and not what I was picturing at all. I think you are fine, it all sounds very similar to my experience 🙂 Best of luck to you!

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  10. Thanks so much for your blog. I am scheduled for this surgery next month and I am very nervous. Your blog has answered questions that I have about the surgery.

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    • I wasn’t instructed to be on any bed rest, but I slept a lot the day after anyway. I think I took it easy for a few days before resuming normal activities. I felt pretty tired and had some cramping, but overall the recovery wasn’t too bad.

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  11. I found this blog as I was trying to find out what to expect as far as recovery/regulating menstrual cycles after surgery. But in reading all the comments here, I thought I’d share my experience (sorry it’s a long story and although family and close friends know, I’ve never posted online before). I had 4 early miscarriages before I even got a referral to a fertility clinic (I live in Canada and wait lists are long and less access to specialists). I was told the wait could be anywhere from 6 months to a year. On one ultrasound I had done after miscarriage to see if there was any remaining “product” left, an arcuate uterus or possible septum was questioned. We decided to travel to MN to the Mayo clinic for testing as we didn’t want to wait that long just to start the diagnostic process. We had lots of tests (blood, chromosome, semen and saline ultrasound). We were hoping that it was a septum because that could be fixed, but they couldn’t find anything wrong. I was told that there may be a small 3mm dip in the uterus, but as far as the RE was concerned, she thought it was normal and not even arcuate. I was given a prescription for progesterone to help with uterine lining, just in case, but no guarantees. I was told that it was likely genetic and we should eventually have a successful pregnancy, but pre-implantation genetic testing with ivf would be our aggressive option. So, we tried again and just as before the spotting started and then we had our 5th miscarriage. I finally got into our local fertility clinic and he still suspected a septum, despite the previous testing (he said the saline test doesn’t always pick up septum a) and scheduled me for a laporoscopy with hysterscopic metroplasty. I went in for surgery 6 days ago, not knowing what he would find, and quite honestly thought he wouldn’t find anything (the Mayo clinic didn’t find anything, why would he?!) So I was completely surprised when I was told that he found a septum that was 1/3 of the length of my uterus! I’ve been told that we need to wait 2 cycles before trying again. It gives me hope that things may work out for us yet, (Studies show that miscarriage rates are as high as 85-90% with a septum, but once removed go down to 10-15% and almost no preterm births) but as only those that have gone through the pain and loss can understand, I am obviously nervous that this isn’t enough and the thought of going through another miscarriage is daunting and I wonder where my breaking point will be. But I would personally go through this surgery again in a heartbeat; the couple of months to prep and recover from surgery is nothing compared to the heartache of multiple miscarriages, the time you drive yourself crazy wondering “what if?” Not to mention the time it takes to get pregnant, miscarry and recover from that. Don’t hesitate or feel bad to get a second or third opinion. Best of luck and I hope everyone gets their happy ending.

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    • Wow, you’ve been through a lot. Thank you so much for sharing your story. I’m so sorry for your losses. But so, so glad you were able to find a doctor who could confirm and remove your septum once and for all. During my hysteroscopy my doctor was also surprised to find such a large septum as the saline ultrasound did not necessarily indicate it was so big. I have a lot of hope for you that your next pregnancy will be successful, but also really understand all the fears behind it. Best of luck to you, and again thank you for sharing your story as it will help so many others who come across this blog going through the same experience!

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  12. This is tejaswi.I got pregnancy after our marriage,but unfortunately I miscarried at 6 weeks.but my gync didnt tel reason why i git miscarried,even she didnt tel us i have uterus anomoly.later i came to know about my utetus.we thought to plan pregnancy after 2 years so I I used birth control pills for 8 months.after that my husband is out of station so I stopped using them.from last December we thought of having baby so we went to another gync she told that I have pcod and my uterus is heart shaped by ultrasound scan.next month she kept me on tablets and I ovulated .we had intercourse during ovulation dates.but I didn’t get pregnant.my husband sperm count is good.my gync told me to go for HSG test.in that test RE told that good spillage seen through tubes.After I went to gync with report.she told good spillage is seen but light infection is there to both tubes(category2a).she also told that uhave septae uterus r bicornuate uterus.you have to undergo lapo hysterscopy to detect the shape and it should be done between 6th and 10th of period.is lapo hysterscopy only way to detect shape of uterus.I m getting scared for this test.pls tell is there any other test to detect shape.if it is sepate it should be removed r i can get pregnat with septae utetus also..thanks in advance

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  13. Hello! Quite pleased to stumble across this blog. I have had 3 miscarriages over the last two years and had surgery to find out I have a uterine septum. I am scheduled for removal November 24th and I am super excited to see if that’s the solution! God hasn’t made things easy for me, but it’s never been a no! So here’s to hoping! 🙂

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  14. I’m surprised there are so many women who have my similar diagnosis. I’m scheduled for a septum resection in one week and have been on birth control pills to keep my lining thin. After 3 miscarriages at 5 weeks, 6 weeks and 13 weeks, we had a beautiful baby boy at 37 weeks. We had taken the 10-week Bradley natural birth course and were planning a home birth w midwife. He was breech, I was in labor and he couldn’t be turned. During the c-section, they found out I have a bicornuate uterus w two complete horns. It was a miracle he grew that big (6.5 pounds) in half a uterus! My boy is 10 months old and we recently had our 4th miscarriage so we looked into the hysteroscopy for uterine resection by a reproductive specialist since my ob did not recommend it. Turns out i will also need a laproscopy as well to make sure they don’t cut too far into the uterine wall. I am soooo excited to finally take action and be able to DO something to decrease my chances of miscarriage and breech babies! I’m 26, but We would love to have 6 kids eventually. I’m nervous about the recovery time and being able to care for my 10 month old.

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    • Thank you for sharing your story, and so sorry for my late reply. I’m so sorry to hear of your losses, but am happy you have your beautiful baby boy! It is great that they discovered your bicornuate uterus and are able to fix it so that you will be able to have your six babies 🙂 How did your surgery go? Hoping you are feeling well and recovery was easy. Hugs.

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  15. Hi, I would just like say how thankful I am to not only have found your blog, but also all of these ladies sharing their stories. My heart goes out to all of you that are struggling with this obstacle. My husband and I have had two miscarriages in about six months. The first was at six weeks and the second was around nine weeks. We didn’t even hear a heartbeat with the first, but we did with the second. (I still haven’t figured out if that made it better or worse on us.) Both times I had spotting, but no cramps. And both times we were told that, judging from the ultrasound, it looked like I may have a bicornuate or septate uterus. There were no chromosomal abnormalities, so my OB referred us to an RE. I have been on birth control pills since the last miscarriage, and we have an appointment next month with an RE. I have a couple of questions that I can’t seem to find many answers to. Actually this blog has given the most helpful answers yet. Please forgive me if my questions seem silly. Did you have to go through very many tests besides the HSG to determine any other fertility issues? I would like to think that since it is in my medical records with both pregnancies that I have a possible uterine abnormality, then the RE will not waste our time or money on unnecessary tests. Also, how long did it take to get a diagnosis and treatment plan (AKA surgery) from the date of your initial appointment? I know I may be overthinking it, but after what we’ve been through, I just want to be as prepared as possible…emotionally, physically, mentally, and financially.
    Thanks again for your blog and all the stories from other readers. It’s nice to know there are other women out there that have insight on this subject…although I know that knowledge hasn’t come easily. Blessings to you all!

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    • I’m so sorry for your losses, but thank you for sharing your story. Your questions are definitely not silly; I remember scouring the internet after my diagnosis wanting to find out every little thing about what to expect! Like you, I went to the RE after our second miscarriage and we did a full fertility work-up since we had no idea what might be causing the miscarriages. We did an SHG instead of an HSG (which is very similar, but focuses more on the uterus rather than the tubes – although there seems to be differing opinion on this) which was the most invasive part of the testing. The rest of the tests involved mainly blood work and and a cycle day 3 ultrasound. We were lucky in that our insurance paid 100% for testing so we went for everything. If you are paying out of the pocket an HSG or SHG will be a great place to start and likely will provide answers. My first appointment with the RE was late February (2014), my surgery was mid April (about 6 weeks later), and I got pregnant a few months after we were cleared to try again. Please feel free to ask as many questions as you wish and hopefully I can provide some insight! Wishing you the best of luck as you proceed and crossing my fingers for a healthy pregnancy very soon!

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  16. Hi all,
    I too, like so many of you other ladies, stumbled across this blog page via Dr Google- here’s a snapshot of my journey thus far: my husband and I have been actively trying to conceive our first since June of 2014- stop birth control and just tried the natural route, but 9 months later we’d had nothing but negatives, and I only had sporadic periods, so my OB ordered a semen analysis and started me on a progesterone cycle to jump start a period, then to start monitoring follicle development via ultrasounds, as it was highly suspected I don’t mature and ovulate on my own. SA was pretty good, not stellar, but not bad (we are in March of 2015 here); we went another 3 months monitoring and the began Clomid/Ovidrel cycles in July of 2015- 2 of the three I produced one egg, But the last cycle in September yielded no measurable follicles, so we were referred to an RE, our first appointment on Oct 6. In the 5th, I began reading through the reports from the ultrasound techs that went back clear to March and the first report noted “suspected bicornuate uterus, less likely uterus didelphyus” and all following stated “as stated in previous exam, suspected bicornuate uterus” I was outraged- my OB never mentioned any suspicious that there might be something wrong with my uterus and to have gone over a year of trying to get pregnant with zero success that that wasn’t something worth mentioning? Went to the RE the next morning and he wanted to do an ultrasound to look at everything, then ordered an HSG for the following Friday- HSG revealed possible blockage in the right tube, but couldn’t be sure- they also suspected at the very least, there was a septum but more likely my uterus was bicornuate. He then suggested I do the Laproscopy/hysto procedure to determine really what the story is, (we are now to mid of October) but they couldn’t get me in until JANUARY 7th- I was very apprehensive about having surgery, I’d never even had an IV or anything more than stitches and a couple broken bones. We tried a Clomid cycle (which yielded 2 mature follicles, but yet another negative) then I was on birth control for 3 weeks prior to this past Thursday’s surgery. I had several meltdowns from fear and anxiety, I was terrified he was going to tell me we had no hope of having children, so when the time came for me to go to the OR & my husband to the waiting area, I was petrified, it was the scariest thing that I’ve ever experienced. Surgery was scheduled for 1230, they wheeled me back about 1235 and the next thing I knew I was in the recovery room- very uncomfortable, but not in a lot of pain really, but I was alert. I asked the nurse what time it was, she told me 230, then I asked if the surgery went well and could I see my husband- I was very emotionally overwhelmed with relief it was over but still anxiety of what happened. To my surprise, my RE came over and talked to me about the procedure, I couldn’t believe it (he had told me flat out he would not be talking to me after, just to my husband, as I wouldn’t remember what was said thanks to the drugs) but he was coming to get the prescriptions out of my chart so my husband could fill them while I was in recovery but he told me there were no problems whatsoever, my tubes are both clear, there was no endo, but I had almost a completely divided uterus, the septum went clear to my cervix, and that he had put a balloon in to help heal, and it would come out in about a week. I was out of recovery about 15 minutes after that which shocked everyone because they expected me to be there for at least another hour or two, but I wanted to see my husband and go home. Before the surgery, the anesthesiologist gave me a pill and put a patch behind my ear to help with nausea, but when they transported me from recovery to post op, I was very lightheaded and nauseous, that was the worst of it, but the nurse brought peppermint oil to aid with it (I had never heard of that before, but it helped a lot) and fairly quickly I was able to walk to the chair and drink some water. We went home a little after 4, and I was okay for the most part, but that night around 1 am I started experiencing a lot of muscle pains and cramping that intensified all the way through Friday and only started to subside after Saturday evening; I had very light bleeding Thursday and early Friday, but Friday evening and Saturday night the bleeding was heavier, I’ve had to change clothing a few times because of bleeding through . Right now I’m not in any real pain, just soreness and cramping a bit, but the muscle pains I read were a side effect from the anesthesia and is very common in young women, especially with abdominal surgeries, so I’m not really worried about that anymore, but I do have 2 concerns I hope someone can help me answer- 1) how much bleeding is “normal”? I don’t want to be hypersensitive, but I don’t know what to expect, I didn’t think to ask the nurse when she called Friday to check on me, I can call the office tomorrow but am curious if I should be alarmed. 2) (sorry for this one in advance) how was pooping with the balloon? I’m terrified to push hard but I haven’t gone in a couple days and I didn’t know if there was a trick or someone who has been there done this that had insight? Sorry for my life story, but I appreciate any advice about this matter!

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    • I’m so sorry for my late response; I really appreciate you sharing your story in such detail as I know it is really helpful for all the anxious ladies out there anticipating this procedure. You’ve really been through a lot, so I hope this procedure is the answer to your difficulties. I know by now it’s too late to weigh in on your two questions, but I hope everything went well and you had a comfortable recovery. Please keep up posted on the rest of your journey if you’d like, and I am crossing my fingers for you are really wishing you the best! Again, thank you so much for taking the time to share your experience. xo

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      • Thanks for your response, my recovery went well- the balloon came out on January 15th and the RE showed me some photos from the surgery, and the septum was really big. He has me on estrogen for 30 days to help speed up the healing process (which ends on Saturday) and progesterone (which also ends on Saturday) to start a period. At the post-op appointment, he told me he wanted us to wait a couple of months before starting to try, which I hope means just take February off and start in March. We go back to the RE on February 15th to talk about moving forward- I’m really hoping to get the go ahead for March, but my husband said he wants to make sure I’m completely healed from the surgery, so he’s not in a hurry. Keeping my fingers crossed for good news, I’ll update after my appointment! Thanks!

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  17. Hi! I’m 39, my husband I have been ttc for about 8 months before we decided it was time to see a specialist, being older, we didn’t want to waste any time. All labs, analysis etc came back normal…but my SSI showed at shape uterus, so an MRI was scheduled to get a clearer look. Result was a septum in my uterus. Moving right along, I just had my Hysteroscopy yesterday happy to report it went very well. I wasn’t sure what the heck any of this was and I must say your blog and all the comments here helped very much. My RE is wonderful but it’s always nice to not feel alone in the process and to read how it went for others. I recovered quickly from the “nap” and have had minimal pain. My septum was rather large, larger than anticipated extending from tube to tube, happy to report my RE got every single bit resected! I too have the lovely balloon catheter for five days, begin estrogen today as well to strengthen those walls… And she thinks we can do our first IUI in April! I just really wanted to say how much I appreciate you sharing your journey, thank you!!

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    • Thank you for your comment and so happy that you found some useful information and that your procedure went well! I hope you are still recovering well. I have my fingers crossed for you for a successful IUI in April. Thanks again for sharing your experience!

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  18. Hi! So happy to have found your blog! I had a miscarriage in June 2013, was then diagnosed with a uterine septum and had it removed via hysteroscopy. I then had a full term pregnancy and my daughter was born August 2014! We have since had a 2nd miscarriage and I was devastated. I thought we were fine now that the septum had been removed. However, I just had a long talk with my RE and she said that even once the septum is removed, we are still at a higher risk of miscarriage because of he scar tissue that remains at the site. She has cleared us to try again, but if we have another miscarriage she is going to recommend another hysteroscopy to try to remove or improve any scar tissue. Have you ever heard of doing this? Or has your RE ever mentioned the scar at the site of the old septum being a potential problem?

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    • I’m so sorry to hear of your losses. I have heard that there is some risk of scar tissue after this procedure, but my RE did not mention that it may be a problem down the road or that we would even definitely even have any scar tissue. However if you are having more miscarriages I can see why your RE might suspect this and I do think a hysteroscopy could help improve any issues. Hopefully though it won’t come to this and you are successful on your next attempt – I’m keeping my fingers crossed for you. ❤

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  19. My RE warned about potential scar tissue, especially since my septum was so large, so he told me before the surgery that he may (and did) insert a balloon to prevent scar tissue from forming, as well as a 30 day run of estrogen to do the same- I’m keeping my fingers crossed that we will finally have our positive result after having the surgery, I’ll keep you ladies posted!

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  20. Hi. I lost a baby at 23 weeks this pay July. My sweet baby boy. Charlie.
    My story: My first baby, Fin, born at 33 weeks in 2012, with him I went on bed rest at 18 weeks and delivered him/csection due to being breached and supposedly a bicornate uterus with also a softened cervix (incompetent). It was a tough and very scary roller coaster of a pregnancy, he went to the NICU. My miracle baby.
    My angel baby, born 23 weeks. Went on bed rest at 18 weeks again and also taking makena progesterone shot once a week. I began with contractions that wouldn’t let up. We prepared for the csection and NICU but his little lungs weren’t strong enough.
    We knew we were working with more than bicornate uterus so we needed answers and peace. We were sent to a specialist who did the shg and MRI to confirm it was a septate uterus. I had the surgery to remove. I slept fit about 3 days and took me a week to get back to normal. The balloon cause mild uncomfortable cramping for the first few days so I laid low. They removed a big piece of my septum and felt good about it. Took all the meds required and waited 2 cycles (both normal) until I had another shg to check. I am having to have the surgery again, still looks like some is there and a polyp. I go next Wednesday. I am beyond anxious and scared. 3 surgeries on my uterus in under a year. I just don’t feel really comfortable about it and ready for this time in my life to pass. Please keeps in your prayers. I feel like I’m reliving the heartache.

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    • Oh, I am so sorry for you loss. How heartbreaking. You’ve been through so much, and I understand your trepidation at going through another surgery. I will definitely keep you in my prayers that this will be the FINAL procedure and that a baby in your arms will soon follow. Thank you for sharing your story and very warm hugs to you.

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  21. Hi Everyone,
    I wanted to say thank you to all of you who shared your experiences. I am 26 and my husband and I have just started with the long road of infertility treatments. I was diagnosed with PCOS in November and have been doing infertility testing since. The HSG was my last test and I was hopeful we were close to getting some treatment. Then a hiccup….

    Today I was diagnosed with a moderate – severe Uterus Septum and was told I will need surgery. I am nervous about the surgery but your experiences have been very comforting.
    I am nervous what affect this surgery is going to have on my existing condition of PCOS as I do not naturally ovulate or get monthly cycles without them being medically induced.

    My husband is very loving and supportive through all of this however he just doesn’t “get it” since it is something happening internally with me. I just needed to share my story that is still being written with women who understand this journey. I am hopeful for the future and hopeful we will be able to conceive, despite the obstacles.

    One logistical item – I am trying to figure out how long to request off of work for recovery. How long did each of you take to rest and recover?

    I appreciate and I am open to any comments / feedback 🙂

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  22. I had one incision made through my navel, and did not have a balloon placed. (Septum was found to be 1/3 of my uterus). My surgery was on a Thursday and I was told a should be able to get back to a “modified normal” in about 48-72 hours, but had restrictions of no lifting more than 10 lbs, no strenuous housework, no sports etc for two weeks. I went back to work on the following Monday, 4 days post-surgery, but by Tuesday I was bleeding heavier than the previous days, whether that was coincidence or because I did too much, I’m not sure, so I took the rest of that week off, which seemed to help.
    I work with young and many disabled children, and although I thought I was being careful there are still inherent risks involved with that. Maybe a job that’s less strenuous physically, might be faster to return to than a more physical one.

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    • Hi Rochelle,
      Thank you so much for the reply! How did you and your doctor decide between the hysterscopy and the laparoscopy (incision)? Is that decision made based on size of the septum or patient preference?

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      • My doctor did both the hysteroscopy and the laparoscopy. They didn’t know for sure if it was a septum when I went in, so it was diagnostic to start and he wanted to see as much as he could. He also said for surgery he wanted both views so that he knew exactly how much/far to remove the septum.

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  23. I am a direct care staff (lifting, bathing etc) so I eneded up taking 7 days off work (surgery was a Thursday went back to work the following Wednesday for a half day, then had another two days off) and needed every day of it but I also had a balloon inserted due to the massive size of my septum. I too have PCOS and am waiting to start a period so we can begin fertility treatments again, but so far, 2 days late and 2 negative pregnancy tests- my RE said if I don’t start on my own by the 10th to call and they’ll have me come in and see what’s up, if we can start Clomid or if I need to have a progesterone run again. Good luck!

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    • Thank you for your feedback, I appreciate it! Good luck with your treatment and the PCOS, the condition is not a fun one to deal with because its always a waiting game.

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  24. Thank you. My surgery is tomorrow I’m feeling a little ptsd but am trying to stay calm. Prayers tomorrow! 3 surgeries on my uterus in under a year scares me.

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  25. Hi all,
    Let me say that finding this blog made me feel so much better. I am 27 and I have one son that is 5 years old. I was told at 14 that I would never have children due to PCOS. When I got pregnant it was a huge surprise. But, now we have been tttc for the past 4 years with no luck. I have always had very irregular periods so last year in March I had a period woo hoo I was kinda excited. Then I went til November without one. When my period started in November I bled every day til March 11th of this year. Now I am going in tomorrow to have a hysteroscopy and I am so nervous. I don’t know what theto are going to find but I am hoping that it is something that they can fix. I would love another child if it is in my hand of cards. But who knows. I just want to know what is going on and hope it isn’t horrible news. After reading all the stories on here it brings a little more hope into my life. I hope that I get lucky and have a BFP sometime in the near future. Thanks for all the amazing advice and information. 🙂

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  26. Hello, Thank you for providing such great and thorough information. I have this scheduled for June 10th and was wondering if you think that it would be safe to go away at the end of July as I am not sure of the recovery?

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  27. Hey everyone! This blog has been the best information out there! I’m 26y married and have had a long journey. Started trying 2 years ago; 3 misscarriages and a Molar pregnancy but finally got some answers: stupid septum! Just had surgery yesterday and now have a lovely balloon catheter 🙂 2 months of hormones and hope to start trying in june! We can all get though this. I hope a happy congratulations is in order for the leader of this blog, Alexis 🙂 xxoo!

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  28. Best wishes for a speedy & strong recovery to those who have had this surgery recently.
    I am about to have it in two weeks, and a little nervous, but feel better when I refer to this post as I feel like it walks me through it. Thank you so much for sharing your experience, really hope this is the solution to our problems after 3 yrs.

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  29. Hello;my wife 25 years old age,she diagnosed one year ago with bilateral ovarian endometriosis (Rt choclate cyst 5.5 cm .lt choclate cyst 3 cm) and uterine septum 2.5 cm.. she take vissane for 3 months measurment of choclate cysts are slightly improved ;so she take 3 cycles with induction of ovulation to be pregnant but unlikely not occured and choclate cysts size increase again so we began vissane 3 months ago and continues on it till now…HSG is done showing Utrerine septum with patent tubes.. what is your opinion about hysteroscopic resection of uterine septum and hormonal therapy after surgery with this endometriotic cysts..

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    • Hi, thank you for your comment. Unfortunately I don’t have any experience to share about this surgery with endometriotic cysts so I don’t have any wisdom to give you. I hope that you are able to find the answers you are looking for and best of luck on your journey.

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  30. Hi there, this blog has been very helpful to me, sorry I advance for the long post but I have been through many years of problems, I just thought I’d share my story since I have been through very similar to a lot of you. I had my son 10 years ago now, he was premature at 30 weeks due to pre-eclampsia and only weighed 1lb 12oz. Since then iv had 6 miscarriages, after the forth I started investigations, I was only getting pregnant after a year of trying each time and when I did get pregnant I miscarried before 12 weeks. Eventually I had some tests on my uterus and they found a possible septate uterus which was confirmed by hysteroscopy, I had this removed, by way of hysteroscopy and laperoscopy so doctor could see if it was a definate septate or bicornate uterus, the doctor from what i can remember at the time said it was a complete septate uterus and he removed what he could, recovery was fine and a year later got pregnant again which ended in another miscarriage, I had a d&c and they tested this for abnormalities and came back with it being an abnormal fetus so we thought it was just bad luck this time but where concerned as it was taking over a year to get pregnant and I was only 3 years off 40 at this stage. We decided to go back to the fertility clinic to see about iui or ivf or to possibly find out why it was still taking so long to get pregnant after the septum was removed. I went through 3 iui’s with no sucess, started ivf got 12 eggs only ended up with 1 healthy embryo after 5 days. They could not implant it due to my lining braking down before they could put the embryo back in. Over the next 3-4 months I tried estrogen, estrogen with patches and progesterone but nothing would work to get my lining past 6mm, I suspected maybe there was scar tissue that was messing with my lining so my doctor refered me to a gynocologist who said he would look for scar tissue and take a look at my septum incase anything was left behind and said he would correct this. Well I have just had this hysteroscopy yesterday and doctor said I have no scar tissue to my amazement due to all the surgery I had on my uterus previously (cesarean, removal of septum, d&c and also a termination 9 years previously). Anyway the doctor did find that I still had about 25% of my septum still there so he removed that last piece and said that my uterus is now a normal shape. My concern now is because there was no scar tissue what could be the cause of my thin lining and the fact that the estrogen didn’t improve this, I am trying to find out if the septum could cause problems with the lining but I can not find anything anywhere online, I have not put anything about my recovery of either surgery due to the extremely long story I have but if anyone would like to know please ask.

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    • I’m sorry for my late reply, but I wanted to thank you for sharing your story. It sounds like you have been through so much and my heart really goes out to you. I’m not sure whether the septum could cause problems with the lining, but I hope your doctors have been able to shed some light on this. Again, thank you for taking the time to share what you’ve been through as I know it helps so many others and I really hope you get your positive very soon. xo

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  31. Hi there! Thank you so much for sharing your story. I was wondering if you have any wisdom to share. I had a uterine septum removed on April 12th which was surprisingly easy. I felt a little nauseated for a day or two afterwards with some very mild cramping, but I was back to normal activities by the next day. My RE wanted me to take estrace 2mg 2X per day for 2 months with progesterone from day 21-30 of both months. The first month, I started bleeding on day 20 before starting the progesterone. I was instructed to go ahead and start the progesterone with the idea that it should stop or slow down the bleeding. It did not! So, my RE just had me stop both the estrace and the progesterone until I stopped bleeding, and then to start the esterase again. I bled very heavily for 9 days, and then it stopped abruptly. Today is day 20 of the second month of estrace….so far so good 🙂 The plan is for me to do IUI with my next cycle. I was wondering if you know when I could expect to ovulate after this estrace mess…the current plan is to try without clomid or other drugs! Should I expect ovulation to be approx. 2 weeks after my period this time around, or are things going to be out of whack for awhile? I am so anxious to get started, I am 39 with a low-ish AMH, and I am worried about so much delay.

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    • Thank you for your comment. It’s hard to say what will happen with your ovulation post estrace…I think the hope is that your cycle would normalize quickly, but given how you reacted to the estrace with the bleeding you might need more time. Hopefully your doctor has been able to shed some light on this (or perhaps you’ve already ovulated by now and things are back to normal!). Wishing you the best on your journey and hope you see that positive soon!

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  32. Thanks for sharing your experience. I’ve read through all the comments and it’s left me feeling really afraid. It seems as though so many women experience go through testing, the MRI, 3d ultrasound, etc and that the doctors don’t really know the extent of the problem until surgery and then if you do get surgery, there’s a great chance you’ll be left with more problems such as scar tissue, cysts and sometimes a failure to even remove the whole septum. It sounds like a heart breaking, anxiety producing experience and I am hesitant if I even want to go down that road. I’m 26 and just had my first miscarriage. I was supposedly 7 weeks but when I started bleeding, the ultrasound couldn’t find any evidence of the baby and my quant level was only 32. The ultrasound did reveal a possible septate or bicormuate uterus and my doctor referred me to a reproductive endocrinologist. I haven’t had my first appointment yet. Last year, I had a copper IUD that stayed in place for 7 months, it caused inflammation which gave me an abnormal pap test and when they went in for a biopsy, they found the IUD falling out (so they removed it and it came out easily) now I realize this was probably from the septate uterus. I’m not sure if this is a good sign or not, meaning the septate maybe isn’t so bad if I was able to hold an IUD for 7 months, though I realize that a IUD is smaller than a baby. Now I need to decide whether to try for a baby again without intervention and maybe go through another miscarriage, or go down this scary road of testing and surgery. Both options sound awful.

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    • Thank you for your comment and sharing your story. I’m so sorry for your loss and all your struggles. I can see how both testing and surgery seems very daunting and scary, but if it makes you feel any better personally I had a very positive experience with the septum removal surgery. The surgery went very smoothly despite my having a quite sizable septum, the recovery process was not painful, and I was able to conceive my baby boy 5 months later. I did get one cyst post surgery, but that resolved within 1 month. I actually felt quite relieved to have an actual diagnosis when I found out about the septum, because so often you are left without answers after pregnancy loss. So while it may seem very overwhelming and emotional right now, I encourage you to meet with the reproductive endocrinologist and try to take things bit by bit. They are there to guide you through the process should you decide to proceed with any testing. I really do understand how hard it all is and I am sending you my warmest wishes for a positive outcome!

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      • Thanks so much for replying to me! I went ahead and did a MRI and I do have a “complete septated uterus”. My reproductive endocrinologist says he has done hundreds of these surgeries to correct it, but I just wonder if you had any experience with seeing different doctors to find the “right” one to perform the surgery. I’m not sure if I should be seeking out an “expert” or if I should trust my RE. Thanks for any advice you can give!

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        • Dee, I have had four miscarriages and my RE believes they were all due to the uterine septum. I did not need a catheter following. Some women do. I had some endometriosis and a fibroid tumor which were discovered during a laproscopy that was done simultaneously with the septum resection. Let me tell you this… It’s not so bad. I was back to work in a couple of days. Like I said, my surgery was more involved due to other issues, but I was back to work full-time four days later. Surgery on Friday, back to work Tuesday. Definitely see the RE. I WISH someone would have found my septum sooner, before four miscarriages. My septum ran parallel to top opening of my cervix, along the width of my uterus instead of the length, and it was fairly thin. Most septums are adjacent to the cervix and run the length of the uterus. I had the trouble with removing tampons, or even using them at all when I was younger. I couldn’t get the tiny tampons in when I first started my period. I was very young so my mom (a nurse) just thought it was my age that made me so tight. I told every OB I saw my entire life that it felt like my cervix and hymen were shrinking between sexual encounters because it felt like the first time every time if I went more than a week or so without intercourse. They shrugged it off. One male doctor even told me my boyfriend was a lucky guy. My point is, save yourself the heartache. Reproductive endocrinologists do this surgery all the time. For something no one ever talks about, this is surprisingly common. I just don’t think OB’s remember it from their training, or there are just a lot of crappy OB’s out there! (I have seen some really crappy ones.) It’s your body and your choice, but if I had known I had this septum after my FIRST miscarriage I never would have tried for another baby until it was gone. It doesn’t get any easier. Every loss is just as (if not more) devastating as the last. The pain piles up. For me, it has never gone away. I’ve lost three “normal” pregnancies and one set of twins and the weight of it follows me. I’ve overcome it. I’ve come to terms with it. I’ve learned to live with it. For me, getting pregnant knowing I haven’t eliminated every possible risk I am aware of before doing so is taking a big risk, and I am PRAYING I don’t have to go through anymore losses. If I had known a simple surgery could have been done 10 years ago, I would have done it then. That’s my 2 cents. I hope it helps.

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          • That helped a lot, Joy, thank you, and thanks for sharing your story and I’m so sorry for your losses. I guess I am just scared of possibly making things worse for my fertility by having the surgery (what if something goes wrong and they perforate my uterus? or I develop too much scar tissue? or some other risk I don’t know about?). I also have people in my life telling me that women who are told they “can’t” have babies have them all the time and that I should wait on God for a baby and just keep trying until I have one and that surgery is risky. I don’t believe those things are true, but it’s still hard, wondering, maybe my next pregnancy could be a “miracle” and the baby could survive.
            I really like what you said about eliminating every possible risk. I completely agree and think I just need to come to terms with trusting the doctor and educating myself more so I understand how much of a ‘risk’ this surgery actually is

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            • It can’t be that risky. My RE has done thousands of them. I think people are more likely to share their stories of they’re traumatic. (Why is that?) It’s like you don’t write a thank you card to the electric company when the lights come on but you’ll be sure to post on Facebook when your power is out and you want to complain. Does that make sense? I think my RE is a blessing, an angel from Heaven. Good luck to you. I wish you the very best.

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          • I have recently been told I have a subseptus uterus, when they were trying to determine if I had endometriosis. I would like to have the surgery before I start trying for children, because I think my chances will be better. I haven’t found anyone who has endometriosis and a subseptus uterus as well. Have You found your own experience to be at all different from the stories other women have shared? I’m afraid my endometriosis will effect my chances a lot, as it runs in my family and has effected my mother and sister so much. Thanks so much for sharing your story!

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            • Alicia, I just now saw this. I’m sorry I haven’t responded. I thought having the septum and endo removed would help with fertility. I had it removed July 2016 and we started Letrozole (similar to Chlomid) that September, with an HCG trigger shot. We did not have any success. It’s a long story but we were not happy with the endocrinologist. His office kept dropping the ball on really important matters, so after trying with him for five months following surgery we took a break. We met with a new doctor, a former OB & immunologist who is now an embryologist and reproductive management specialist who has actually developed many of the testing and treatment methods used with fertility over the last 20 years. He said, unfortunately, that my septum was not that big judging from all of my records. In fact, he said I probably could have gone without having the surgery at all and still would have been able to conceive and maybe even maintain a pregnancy. He thinks our miscarriages had nothing to do with the septum or endo at all and have most likely been because I am not developing good embryos, so there is either a problem with egg quality or sperm quality, or both. He said, even if we were both 100% healthy and there were no issues with our eggs/sperm, there is only a 25% chance a “good” egg will meet with “good” sperm in any given cycle. I always knew the chances of conceiving each cycle were about that good for any couple, but no on ever explained to me that there is a 75% chance the egg or the sperm, or both, are not viable candidates for a healthy pregnancy each cycle. There was a lot we weren’t told, and a lot of misinformation was given to us by those who we were PAYING to help us. Unfortunately, I think that’s the status quo. Look up Missouri Center for Reproductive Management and Dr. Peter Ahlering. There is a lot of info on his website, including blog posts, support info, and the scientific information behind it all.

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  33. I tried to follow your blog via the WP app but I haven’t figured out how to get to a specific page within the app. I just had a septum resection and my story is somewhat similar to yours. My partner and I haven’t had sex in months because we had a miscarriage in May and it’s been a whirlwind ever since. The RE doesn’t want me on birth control because they don’t want my hormones off track. I’m sensitive to latex (& quite frankly, it hurts when we use them – even with lubricant). I’m curious how long everyone waited to have sex after the surgery. It’s been two weeks. I’m not ready, but my partner asked me this morning how long we have to wait. 1) We can only have protected sex and I don’t like having sex with condoms. 2) Even if I didn’t mind the condoms, I don’t think I am ready physically or mentally. We start fertility treatments in October. I know I can’t make him go that long without some kind of “attention” but I honestly don’t think I would mind. I have no problem telling him I am not quite ready to try anything just yet. (I had a laproscopy as well and the stitches haven’t even fallen out yet.) However, I would also like to have some extra ammo in my back pocket to help him understand that some other women waited four weeks, six weeks, etc. If I can tell him some women wait a long time, maybe it won’t seem like I am just being selfish. He has been so patient, and he said he wasn’t asking for himself but was just trying to understand the process. (He also asked about exercise, my periods, etc.) I don’t want hm to feel like I am making excuses to avoid intimacy. Anyone have some advice?

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    • Hi Joy, thank you for your comment and I’m so sorry for your loss. Did your doctor give you the go ahead to resume sex? I honestly can’t remember how long we waited, but I know I was not ready very quickly after the surgery either. I probably waited until the next cycle. I remember the emotional toll being very difficult and having sex for fun took a while to happen again. It’s definitely not selfish – you’ve been through a lot, emotionally and physically! Best of luck to you. xo

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      • Yes. The doctor have the go ahead after two weeks but of course cautioned that we should wait until I was ready physically and we were both ready emotionally. We gave it one try and it was fine but afterwards I was a little achy. I was also ovulating so my ovaries hurt a little to begin with. We don’t want to get pregnant so we were careful. I still have three more weeks before it all should be totally healed. (Doc said six weeks total.) I want to limit activity until we start the meds on October, but I think we both needed to try just to reassure ourselves it would be okay.

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  34. Hi Alexis..Your blog is very helpful. Me and My wife have gone thorough same phase. After 5 months of Hystroleproscopy my wife got pregnent and now we have one yr old healthy baby.
    Just want to know if, is there any chance that septum can grow again and can affect second baby hopes.

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  35. Just had my surgery today on Friday 🙂 Histeroscopy with a septum resection. Had a huge fibroid in the smack center of the septum. So far I’m healing well. A bit crampy. But no problems. Thank goodness. Thank you for sharing. I am king this Friday to have the balloon removed. Now I won’t be so nervous. ❤️

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  36. Hi Alexis i was told that i have a large utrine septum and doctor recommended to be removed iam so scared cause i ‘ve never had any surgeries done in my life to think about it made me terrifed. My question is how does it feel to be under general anesthesia and if i removed the septem i can try to consieve the following month

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  37. Having anesthetic is like falling asleep, you’re awake and then you’re not. Then you wake up groggy and slightly sore/uncomfortable from being filled with air during the surgery. It wasn’t bad for me, although it can make people nauseous. You should ask you Doctor what they recommend for wait time before TTC again. I was told to wait 2 cycles to make sure everything healed properly. Hope that helps!

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  38. Hi all! I have been following this blog and thread for awhile. I am scheduled for my surgery the second week of October after having 1 miscarriage and discovering the septated uterus. I was supposed to call my doctor when I got my period in order to confirm surgery. Last week, I had mild spotting for a day and thought my period was coming. I was surprised that it did not come and started to get worried. I googled “reasons for spotting a week before period” and saw “pregnancy” as a listed reason. I took four tests and all of them are positive. I called my RE and they are going to watch my quant levels and see what happens. I’m really surprised, as my husband and I were being very careful to not get pregnant, but I guess it didn’t work. I feel pretty upset – as I was mentally prepared to do the surgery and now I have to deal with the anxiety of having a pregnancy with a completely septated uterus. In all of your experiences, did you miscarry prior to 8 weeks? Is the risk still high post 8 weeks for miscarriage? As I understand it, we miscarry because the baby implants in the septate tissue rather than on the uterine wall. With my first pregnancy, I miscarried prior to 8 weeks and did not have “implantation bleeding”. Wondering if the spotting I had last week is a good sign that the baby implanted on the uterine wall?

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  39. I was recently going through some tests to determine what is causing my severe menstrual pain and heavy bleeding. They were able to determine endometriosis by process of elimination, which will be confirmed with an upcoming laproscopic surgery to explore for it. They also found I have a subseptus uterus, which they were not expecting, and since I have not started trying to have a family yet, they were not looking for. I am in a serious relationship, and we would like to get married, and start a family in the next few years, so this came as a complete shock, and huge upset to me, as they told me it may be extremely difficult to conceive, and if I do, I probably won’t have good results. I have been researching, and I’ve found so much great information. My doctor told me that when the time is right, I can look into getting the surgery to remove it, and I may have success having a child. I stumbled on this article, and it is so wonderful to hear there ARE people who have gotten pregnant after the surgery. I’d like to know if anyone has had it before they started trying to get pregnant because I would like to have it removed first if it will better my chances at having a successful pregnancy. Most people I see commenting on different sites have had several miscarriages before finding out of their subseptus uterus, and I feel that since I know now, it might be wise to get the surgery before we start trying to better our chances. Also, I have not seen anyone mention other female health issues, such as endometriosis. Anyone have that well? It runs in my family, and I was told the combo could possibly make it nearly impossible, and I don’t know if anyone else out there has gone through both. We want to have children very badly, and I just want to find out as much as I can as I have never heard of a subseptus uterus before I was told I had one. Thanks!

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  40. I had surgery a week ago to have septum removed. My doctor said it was rather large 3.5 cm and he had to quit cutting as to not go through the top of my uterus. We will check with 3D ultrasound next month to make sure all had been removed. I am 40 yrs old and husband is 44. We have been married 3 years and tried to conceive with no luck. During our infertility checkups we discovered my husband is azoospermia due to an obstruction. He has to have a surgical procedure to retrieve sperm and we will attempt IVF when my uterus is ready. I’m so sorry to hear of the miscarriages that so many women on this blog have endured. It sounds very heartbreaking but I hope we all achieve the final goal and a healthy pregnancy. Do any of you also have endometriosis? My doctor said I have Stage 2 endometriosis and that most women with a septum also develop endometriosis. Painful periods all my life and finally at 38 years old a doctor took the time to diagnose the uterine septum with a 3D ultrasound. By the way, did Alexis, the woman who started this blog have her baby? How is your family doing?

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  41. I’ve gone through something very similar to yours, having a large septum dividing from the uterus, right down to the vagina so I had a cervical cerclage put in to to prevent an imcompetent cervix. I miscarried last year(now thinking the egg implanted on the septum). No luck TTC since then so had the transvaginal excision a month ago. Feeling really hopeful and hoping that was the only thing preventing me getting pregnant.

    How long after surgery did you start TTC? It’s so reassuring to hear from other girls in the same situation.

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